By David Tuller, DrPH During my week in Perth, I visited Alem Matthees twice. Alem is the patient who successfully fought Queen Mary University of London for access to raw PACE trial data; reanalyses of these data have exposed how the extensive outcome-switching led to the improved results reported by the investigators.
By David Tuller, DrPH And now, from our good friends in the psychology department at the University of Bath, comes the shopping bag study we’ve all been waiting for. Here’s some information recently disseminated by the university: The purpose of this study is to look at how people with CFS/ME respond when asked to do …
Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website Read More »
By David Tuller, DrPH Last week, I spent three days in Hobart, on the island of Tasmania. Besides strolling around looking for cafes where I could drink decent coffee and write, my main work-related activity was giving a talk at Menzies Institute for Medical Research, part of the University of Tasmania. About 40 people attended, …
By David Tuller, DrPH SBS, a national TV network in Australian, featured a 12-minute segment last night on a show called The Feed. It was already in the works when I got here, so my visit was timely. I didn’t expect to cry during my interview, but, well, I did. As a journalist, I immediately …
Trial By Error: A Terrific Piece about ME/CFS on Australian TV Read More »
By David Tuller, DrPH A couple of times a year, Berkeley offers campus projects an opportunity to crowdfund on the university’s platform. So unlike last year, when I used a third-party site, this time my ME/CFS project is crowdfunding money directly into Berkeley. That saves a lot of hassle, and it also means less money …
Trial By Error: My Berkeley-Backed Crowdfunding Campaign Read More »
By David Tuller, DrPH On February 20th, Carol Monaghan, a member of Parliament from the Scottish National Party, led an extraordinary debate in the House of Commons about the ethical and methodological failings of the PACE trial. The debate included discussion of the debilitating nature of the illness, the conflicts of interests of the PACE …
Trial By Error: A Q-and-A with Scottish MP Carol Monaghan Read More »
