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Trial By Error: Interview with Chris Ponting about “Sequence ME & Long Covid”

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By David Tuller, DrPH Last year’s release of the results from the DecodeME, a UK-based genome wide association study of more than 15,000 DNA samples, generated significant excitement. Action for ME, which spearheaded DecodeME, recently announced that it had received funding for a multi-phase follow-up project called Sequence ME & Long Covid. The UK government …

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Trial By Error: My Exchange with an FND Physical Therapy Specialist

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By David Tuller, DrPH When I write about functional neurological disorder (FND) or functional neurological symptoms, I sometimes get feedback from Zachary Grin, a physical therapist in New York. As an FND specialist, he disagrees with pretty much everything I write about the topic.  At first, I tried to engage with Zachary in a good-natured …

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Trial By Error: My Request for Correction of Causal Claim for Functional Neurological Symptoms

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By David Tuller, DrPH This morning I sent the following letter to CNS Spectrums, a neuroscience journal published by Cambridge University Press. Subject line: “Correction needed for etiological statement in ‘Functional neurological symptoms occur commonly in healthy adults: implications for the pathophysiology of FND.’” Depending on the response, or lack of one, I might also …

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Trial By Error: So FND Is Not Only a Brain “Software” Issue After All…

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*Kim H, a FND patient with whom I have frequently exchanged views, has left a comment below. I urge others to read it. I disagree with her interpretation, but I certainly think she has a right to express her perspective. However, I stand by my post. ********** By David Tuller, DrPH For years*, experts in …

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Trial By Error: More on Long COVID panel at Psychiatrists’ Gathering

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By David Tuller, DrPH I don’t generally write much myself on May 12th, which is an international day of awareness for ME. I’m aware of ME most of the time and write about it constantly, so I don’t feel a particular need to say anything special today. I usually consider it a day for patients …

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Trial By Error: News Bits–“Frail & Furious” for #Millions Missing; Usual Suspects at Psych Confab; Long COVID Advocates Channel ACT UP

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By David Tuller, DrPH *This is a crowdfunding month at UC Berkeley. If you’d like to support my work, the link is here. ********** “Frail and Furious” on May 12th Each year on May 12th, an international day of ME awareness, #MillionsMissing protests are held in cities across the world and draw significant media attention. This …

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