By David Tuller, DrPH When I was a young gay man in the 1980s (I’m 67), a common term for sexual orientation was “sexual preference.” This phrase always struck me as weird. Preference? The urges I felt were not a “preference.” Preference clearly implies a choice—as in, I prefer to live in the city rather …
By David Tuller, DrPH So, okay…The big enchilada from the US National Institutes of Health’s seven-year, $8-million, under-recruited and over-hyped study—”Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome”–was published last week in Nature Communications. It would be fair to describe the ensuing public debate over this massive text-and-data dump as spirited. (NIH press release here; …
By David Tuller, DrPH Last Tuesday and Wednesday (December 12th and 13th), the US National Institutes of Health–and, specifically, the National Institute of Allergy and Infectious Diseases–held a two-day meeting called “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID.” In 2019, I’d physically attended a similar NIH gathering; this time, I …
Trial By Error: #MEAction’s Jaime Seltzer on Recent NIH Gathering Read More »
By David Tuller, DrPH Betsy Ladyzhets is an independent health, science and data journalist who has been covering the coronavirus pandemic, including long Covid. While serving as a journalism fellow at MuckRock, she co-wrote an investigative report for STAT, a well-known health and medical news site, about the US National Institutes of Health’s problem-plagued $1.2 …
By David Tuller, DrPH*April is crowdfunding month at UC Berkeley. If you like my work, consider making a tax-deductible donation to Berkeley’s School of Public Health to support the Trial By Error project: https://crowdfund.berkeley.edu/project/37217 Each year, the US National Institutes of Health publishes its “estimates of funding for various research, condition, and disease categories.” These estimates …
By David Tuller, DrPH There is a lot going on in the ME and ME/CFS world that I don’t get around to. That’s why I’m always grateful that Jennie Spotila always deconstructs the numbers on the annual spending claims from the National Institutes of Health. Last month, on her blog Occupy M.E., Spotila submitted the …
Trial By Error: Jennie Spotila’s Annual Fact-Check of NIH Spending on ME/CFS Research Read More »
