NICE

Trial By Error: Dutch Survey Respondents Rate GET/CBT as “the Worst” Approach, Per New Report

By David Tuller, DrPH A survey of more than 1500 patients in the Netherlands with a diagnosis of ME, CFS or ME/CFS rated graded exercise therapy as “the worst” interventions, according to an article on the site of the ME and Disability Support Group, while “explanation and advice about the importance of lying down to …

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Trial By Error: That Whine De Coeur about NICE’s Rejection of GET/CBT Regimen, and ME Action UK’s Disappearing Rebuttal

By David Tuller, DrPH On July 10th, the Journal of Neurology, Neurosurgery, and Psychiatry (JNNP) published what can only be called a whine de coeur from a bunch of academics and investigators on the wrong side of a dispute with Britain’s National Institute for Health and Care Excellence (NICE). Their article was called “Anomalies in …

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Trial By Error: Families with Long Covid Kids Fight Against Medical/Social Services

By David Tuller, DrPH For decades in the UK, parents of children with what was formerly called chronic fatigue syndrome have run the risk of being accused of making or keeping their kids sick and/or not pursuing proper treatment strategies. These cases have been based on the discredited belief that graded exercise therapy (GET) and …

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Trial By Error: An Updated Letter to the NICE Chief Executive About the Unpublished ME/CFS Guideline

By David Tuller, DrPH I sent the following letter today to Professor Gillian Leng, chief executive of the National Institute for Health and Care Excellence (NICE). It was a follow-up to the letter I sent on September 1st about the agency’s decision to delay publication of it new ME/CFS guidelines. The letter has now been …

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Trial By Error: More Science-as-Promotion from the GET Campaigners

By David Tuller, DrPH Professor Trudie Chalder, Professor Peter White and like-minded members of the CBT/GET ideological brigades have appeared desperate in the last year to promote their favored interventions, publishing one shoddy paper after another. This stream of sewage has seemed intended  to influence the new ME/CFS clinical guidelines that Britain’s National Institute for …

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