Update: Maeve’s mum, Sarah Boothby, has commented on this blog. I am posting her comment here: Sorry if this seems picky but Maeve did not die in hospital [DT: Fixed! Not sure how I made this error] and the RDUH Trust document is what we call a treatment pathway. It is the first of its …
Trial By Error: Agencies Respond to Coroner’s Report in Boothby O’Neill Inquest Read More »
By David Tuller, DrPH Karen Hargrave is co-founder of an advocacy campaign called #ThereForME, which was launched this past summer to draw public awareness to the UK’s lack of care and treatment and to call “for an NHS [National Health Service] that’s there for people with ME and Long Covid.” The campaign has drawn significant …
Trial By Error: Interview with Karen Hargrave, Co-Founder of #ThereForME Read More »
By David Tuller, DrPH October is a crowdfunding month at University of California, Berkeley. If you’d like to support my work, you can make a donation to the university (tax-deductible for US taxpayers) here. ********** For two weeks in late July and early August, His Majesty’s Assistant Coroner Deborah Archer heard testimony regarding the death …
By David Tuller, DrPH Tuesday, September 17th, was World Patient Safety Day. (I didn’t know that either.) In the UK, more than 200 physicians, nurses and other health care providers and professionals marked the occasion by issuing an appeal—in the form of a letter to Wes Streeting, Secretary of State for Health and Social Care …
By David Tuller, DrPH ME patients and advocates in England have been alarmed by a series of ongoing cases in which the families of severely ill young women have struggled to convince hospitals to fit them with feeding tubes before they starve to death. I covered a similar situation last year in a piece about …
By David Tuller, DrPH Last week, Codastory.com published an article I wrote about Maeve Boothby O’Neill, a 27-year-old in Exeter, England, who died in October, 2021, from complications of ME. The specific cause appears to have been malnutrition. Despite being alerted to the seriousness of Maeve’s condition, the local hospital resisted appeals to insert a …
Trial By Error: My Article About the Life–and Preventable Death–of Maeve Boothby O’Neill Read More »
