Long Covid

Trial By Error: Canadian Group Seeks Feedback on Recommendations for Exercise and CBT for Long Covid

By David Tuller, DrPH A group called Canadian Guidelines for Post COVID-19 Condition (CAN-PCC) has released a new set of draft recommendations related to preventing, diagnosing and treating what is commonly called Long Covid. The current list of nine draft recommendations includes exercise and cognitive behavior therapy, which has understandably raised concerns among advocates for …

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Trial By Error: The BMJ Corrects REGAIN Study’s Expansive Claims; Results Only Applicable to Post-Hospitalized Long Covid Patients

By David Tuller, DrPH In February, The BMJ published a study called Clinical effectiveness of an online supervised group physical and mental health rehabilitation programme for adults with post-covid-19 condition (REGAIN study): multicentre randomised controlled trial.” (Post-Covid-19 Condition, or PCC, is one of many current definitions for Long Covid.)The study, led by a team from …

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Trial By Error: Some Things I Read This Week–Scathing “Effort Preference” Analysis; Kids with Long Covid; National Academies’ Long Covid Definition

By David Tuller, DrPH An in-depth pushback on “effort preference” When the U.S. National Institutes of Health’s long-delayed “deep phenotyping” study of a handful of ME/CFS patients was released earlier this year, the focus on a weird construct called “effort preference” sucked up all the attention–in part because the paper placed it front and center, …

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Trial By Error: BBC Takes on Lightning Process and Highlights Perspectives of the So-Called “Anti-Recovery Activists”

By David Tuller, DrPH *This is a crowdfunding month for Trial By Error. Donations (tax-deductible to US tax-payers) go to the University of Calinfornia, Berkeley, to support the project. The link to the crowdfunding campaign is here: https://crowdfund.berkeley.edu/project/42302 UPDATE: At the end of this post, I mentioned the patient in the BBC report who said she …

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Trial By Error: A Conversation with the Co-Founders of The Sick Times

By David Tuller, DrPH *This is a crowdfunding month for Trial By Error. Donations (tax-deductible to US tax-payers) go to the University of Calinfornia, Berkeley, to support the project. The link to the crowdfunding campaign is here: https://crowdfund.berkeley.edu/project/42302 Journalists Betsy Ladyzhets and Miles Griffis are the co-founders of The Sick Times, a non-profit that covers …

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Trial By Error: Interview with Co-Organizator of Next Week’s Unite To Fight Long Covid and ME/CFS Conference

By David Tuller, DrPH *This is a crowdfunding month at Berkeley for Trial By Error. If you appreciate my work, here’s a link to donate (tax-deductible to US taxpayers) directly to the university: https://crowdfund.berkeley.edu/project/42302 ********** Marco Wetzel, a digital sales expert, is one of five German Long Covid patients who banded together earlier this year …

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