australia

Trial By Error: Australian GPs Keep Promoting Exercise Treatments for ME/CFS

By David Tuller, DrPH When it comes to treatments for ME/CFS, the Royal Australian College of General Practitioners (RACGP) has long endorsed the graded exercise therapy (GET)/cognitive behavioral therapy (CBT) approach. Last April, the organization published an “updated” article in its Handbook of Non-Drug Interventions (HANDI) advocating “incremental physical activity” for what it called CFS/ME. …

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Trial By Error: My Visits with Alem Matthees, 2025

By David Tuller, DrPH *This is a crowdfunding month at University of California, Berkeley. If you appreciate my work and would like to make a donation (tax-deductible to US taxpayers) to the university in support of my position, here’s the link: https://crowdfund.berkeley.edu/project/46120 ********** In 2018, I spent six weeks in Australia, visiting multiple cities on a …

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Trial By Error: A Reprise of a 2018 Post on My Visits with Alem Matthees

By David Tuller, DrPH In 2018, I spent six weeks in Australia, visiting multiple cities on a kind of ME/CFS tour around the country. Near the end, I spent five days in Perth. The local patient and advocacy organization arranged for me to give a talk, do some lobbying with local government, and so on. …

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Trial By Error: My 2018 Post on Andrew Lloyd’s Memory Lapses, Revisited

Yesterday, in Sydney, I gave a presentation at the Kirby Institute, a renowned research center at the University of New South Wales, along with my friend and colleague Dr David Joffe, a respiratory medicine specialist. David spoke about the pathophysiology of Long Covid as well as the enormous economic burden of the disease. I spoke …

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Trial By Error: Australian Survey Seeks Input for New ME/CFS Guidelines

By David Tuller, DrPH Australia’s National Medical Health and Research Council (NMHRC) recently released what it calls a “scoping survey” as a first step in developing new clinical practice guidelines for ME/CFS. The survey was posted online on February 21st; the deadline for responding is April 27th. The plan calls for the new guidelines to …

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Trial By Error: Some Things I Read This Week–Scathing “Effort Preference” Analysis; Kids with Long Covid; National Academies’ Long Covid Definition

By David Tuller, DrPH An in-depth pushback on “effort preference” When the U.S. National Institutes of Health’s long-delayed “deep phenotyping” study of a handful of ME/CFS patients was released earlier this year, the focus on a weird construct called “effort preference” sucked up all the attention–in part because the paper placed it front and center, …

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