anil van der zee

Trial By Error: Some Things I’ve Read Recently: Anil van der Zee on Sex, “Mold Warrior” Johnson, and a Rant Against the Word “Journey”

By David Tuller, DrPH Anil van der Zee says “Fuck M.E.” One aspect of ME and ME/CFS that receives perhaps too little attention is the impact on someone’s sex life. Engaging in sexual activity takes a significant amount of energy—and is therefore likely to trigger post-exertional malaise for many with this illness. Especially for those …

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Trial By Error: In a Compelling Documentary, Five Doctors Discuss Being Sick

By David Tuller, DrPH *This is a crowdfunding period at University of California, Berkeley. If you appreciate my work and would like to make a donation (tax-deductible to US taxpayers) to the university in support of my position, here’s the link: https://crowdfund.berkeley.edu/project/46120 ********** I first connected with Anil van der Zee, a severe ME patient in …

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Some Things I’ve Read Recently…in STAT, The Sick Times, Van Der Zee’s Blog

By David Tuller, DrPH Embedding ME/CFS in NIH’s RECOVER initiative Ian Lipkin is a well-known professor of epidemiology at Columbia University and director of the Center for Solutions for ME/CFS, funded by the U.S. National Institutes of Health (NIH). In a recent opinion piece for STAT, he and ME/CFS patient advocate Elizabeth Ansell, the founder …

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Trial By Error: Anil van der Zee’s New Video on Living with Severe ME

By David Tuller, DrPH *This is a crowdfunding month for Trial By Error. Donations (tax-deductible to US tax-payers) go to the University of Calinfornia, Berkeley, to support the project. The link to the crowdfunding campaign is here: https://crowdfund.berkeley.edu/project/42302 ********** Anil van der Zee and I first connected in 2016, when he invited me to Amsterdam to …

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Trial By Error: A Day in the Life of Anil van der Zee

By David Tuller, DrPH It is May 12th–ME International Awareness Day. (Or ME/CFS International Awareness Day if you’re the US Centers for Disease Control and Prevention. In Washington, DC, #MEAction and Body Politic have organized a protest and press conference “to demand bold, urgent governmental action for the millions of people living with myalgic encephalomyelitis …

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