…son late in 2021. That coincided with the upheaval for this project caused by the organisational changes and complaints discussed in this report. The combination of extended uncertainties and confidentiality…
…geneticist whose son’s illness triggered his search for answers to the illness; and Vicky Whittemore, the National Institutes of Health program officer who overseas funding in this domain. While most…
By David Tuller, DrPH More than ten years ago, Natalie Boulton and her son, Josh, made a film called “Voices from the Shadows,” about the plight of ME patients. Natalie,…
…Davis, a prominent geneticist at Stanford University, dedicated himself to investigating thie illness after his son became sick. In late November, Whitney posted a video of himself speaking—a startling development….
…challenges of three patients. One of them, Danny, is the teenage son of Action For ME executive director Sonya Chowdhury, who has been a key player in pulling the project…
…shook for a moment, then she turned to tend to her son. The following week, I spent most of a day with Alem’s family. Helen gave me a follow-up note…
