Trial By Error: A Reprise of a 2018 Post on My Visits with Alem Matthees
…much physical contact. So I grazed his hand lightly a couple of times. I told him I came to Perth to meet him, that patients everywhere wanted to let him…
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Trial By Error: A Few Things I’ve Read (or Heard) Lately About ME/CFS and Long Covid
…geneticist whose son’s illness triggered his search for answers to the illness; and Vicky Whittemore, the National Institutes of Health program officer who overseas funding in this domain. While most…
Trial By Error: Q-and-A with Natalie Boulton, Director of “Dialogues for a Neglected Illness”
By David Tuller, DrPH More than ten years ago, Natalie Boulton and her son, Josh, made a film called “Voices from the Shadows,” about the plight of ME patients. Natalie,…
Trial By Error: An Updated Letter to the NICE Chief Executive About the Unpublished ME/CFS Guideline
…& Fibromyalgia support group Bolton, England, UK Cambridgeshire Rural ME Group Cambridgeshire, England, UK Cambridge ME Support Group Cambridge, England, UK Central London ME Group London, England, UK Chester MESH…
Trial By Error: Three Blogs–Julie Rehmeyer on Beth Mazur’s Death; Whitney Dafoe on Real Life; Elke Hausmann on Exercise and “The Salt Path”
…close friend and fellow person with ME, Julie Rehmeyer. It is hard to imagine what feels unimaginable—the shock and pain of finding the body of someone you love in their…
Trial By Error: Excellent News Coverage of UK Genetics Study in The Times
…challenges of three patients. One of them, Danny, is the teenage son of Action For ME executive director Sonya Chowdhury, who has been a key player in pulling the project…