…for them and enable them to have some meagre quality of life. They remain pretty much invisible and immensely vulnerable as their parent-carers become too ill to care for them,…
…Support Group Hertfordshire, England, UK High Weald Support Group Sussex, England, UK Hope 4 ME & Fibro Northern Ireland Northern Ireland, UK Invest in ME Research Hampshire, England, UK Invisible…
…paralytic disease in man. They made the modest suggestion that poliomyelitis might be caused by an invisible virus, an opinion soon confirmed by other experiments. The identification of poliovirus was…
…March 2020, I tweeted this: “#coronavirus is ongoing international emergency. #MyalgicEncephalomyelitis has been international crisis/scandal for decades. In US #ME continues to be marginalised by @CDCgov & @NIH.Nevertheless #ME advocacy must continue as #ME patients everywhere remain vulnerable + invisible.” Since that…
…do you go about diagnosing an invisible condition, one that you know exists because you’re living it. You know what it feels like, and what it’s doing to your body,…
…David L. Kaufman, MD, Center for Complex Diseases Jim LeBrecht, Documentary Filmmaker, Board Member at Disability Rights Education and Defense Fund Michele Lent Hirsch, Author, Invisible: How Young Women with…
