…always worth reading whatever Dutch patient and advocate Anil van der Zee writes. (He also creates visually arresting video-essays.) A former professional dancer who lives in Amsterdam, Anil has been…
…Zoe Campbell, 45, has had severe ME and been homebound for decades. She lives in London. She sent me this moving essay about her experience and the enormous toll it…
…often can profoundly affect the lives of patients.” Patients with the disease have always known this and are, understandably, deeply hurt and offended by the denigration they receive from some…
…found in ME patients. She bore her lack of autonomy, independence, her suffering and burden with an unimaginably positive attitude to life and a great sense of humor. She cherished…
…they were very far from feeling normal and feeling the way that they felt prior to covid. While you were taking it seriously, did you run into the attitude that…
…Brigham and Women’s Hospital in Boston, who studies people with both diagnoses… “Systrom says he has ‘absolutely’ seen a change in attitude among fellow doctors who had been skeptical of…
