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Trial By Error: Disastrous Results for Professor Crawley’s Pediatric Online CBT Trial

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By David Tuller, DrPH Pediatrician Esther Crawley, Bristol University’s methodologically and factually challenged grant magnet, has released what seem to be the first outcome results from her much-hyped but fatally flawed FITNET-NHS trial—and they are disastrous. The trial, a pediatric study of online CBT based on similar Dutch research that (falsely) claimed to have proven …

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Trial By Error: Julie Rehmeyer on the Heartbreaking Loss of Beth Mazur

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By David Tuller, DrPH Beth Mazur was a long-time ME advocate and a co-founder of #MEAction. ME-world was shocked to learn on Friday–two days ago–that she was gone, at the unconscionably young age of 47. At the time, she was visiting New Mexico and Julie Rehmeyer, another patient and advocate. Words often fail at times …

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Trial By Error: Betsy Ladyzhets on New HHS Funding for Long Covid Clinics

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By David Tuller, DrPH Investigative journalist Betsy Ladyzhets is a co-founder of The Sick Times, a new online publication covering long Covid and related disorders. Last week, she wrote about a new grant program for long Covid clinics from the U.S. Agency for Healthcare Research and Quality (AHRQ), part of the Department of Health and …

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Trial By Error: #MEAction’s Jaime Seltzer on Recent NIH Gathering

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By David Tuller, DrPH Last Tuesday and Wednesday (December 12th and 13th), the US National Institutes of Health–and, specifically, the National Institute of Allergy and Infectious Diseases–held a two-day meeting called “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID.” In 2019, I’d physically attended a similar NIH gathering; this time, I …

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Trial By Error: Update on Our Letter Concerning the Prevalence of Functional Neurological Disorder

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By David Tuller, DrPH In August, I submitted a letter to NeuroImage: Clinical concerning inflated rates of prevalence of functional neurological disorder, on behalf of myself and nine colleagues. After the letter went through peer review and a round of revisions, I was informed in early November that it had been accepted, as I noted …

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Trial By Error: Dutch Survey Respondents Rate GET/CBT as “the Worst” Approach, Per New Report

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By David Tuller, DrPH A survey of more than 1500 patients in the Netherlands with a diagnosis of ME, CFS or ME/CFS rated graded exercise therapy as “the worst” interventions, according to an article on the site of the ME and Disability Support Group, while “explanation and advice about the importance of lying down to …

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