By David Tuller, DrPH Last week I sent an e-mail with some questions to Sir Andrew Dillon, the chief executive of the National Institute for Health and Care Excellence (NICE). In particular, the questions involved the status of the ten-year-old guidance for CFS/ME, CG53, and of references to the illness elsewhere within the NICE system. …
Trial By Error: Current NICE Guidance Stands, For Now Read More »
By David Tuller, DrPH First, for those who might have missed it, here’s a conversation from This Week in Virology (TWiV), posted a few days ago. Dr. Racaniello and I discuss the CDC, NICE, Esther Crawley’s ethically challenged behavior, the CMRC, and other stuff. Second, earlier today, I sent the following e-mail to Sir Andrew …
Trial By Error: Another Letter to NICE’s Sir Andrew Dillon Read More »
By David Tuller, DrPH The National Institutes of Health is making a $2.1 million grant to the UK ME/CFS Biobank–a huge endorsement of this important project run by CureME and housed at the London School of Hygiene and Tropical Medicine. Here’s what the ME Association wrote on its website: The funding represents the biggest ever …
Trial By Error: NIH Grants $2.1 Million to UK Biobank! Read More »
By David Tuller, DrPH Let’s give credit where it’s due. Apparently someone with decision-making authority at the National Institute for Health and Care Excellence (NICE) has a grasp on reality and is willing to challenge the claims of the biopsychosocial ideological brigades. That’s the only logical explanation for last Wednesday’s welcome but unexpected announcement that …
Trial By Error: NICE Rejects Current Guidance, Plans “Full Update” Read More »
By David Tuller, DrPH In his welcome talk at last week’s annual conference of the CFS/ME Research Collaborative (CMRC), the chair, Professor Stephen Holgate, praised his colleague and second-in-command, Professor Esther Crawley, for her stunning and amazing work on the group’s main research initiative. There was just one problem: That initiative, the ME/CFS Epidemiology and …
By David Tuller, DrPH My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) was for information about the experts consulted in the current process of reviewing CG53, the 2007 guidance for the illness the agency calls chronic fatigue syndrome/myalgic encephalomyelitis. In its response, the agency explained that …
