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Trial By Error: Some Things I Read This Week–Scathing “Effort Preference” Analysis; Kids with Long Covid; National Academies’ Long Covid Definition

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By David Tuller, DrPH An in-depth pushback on “effort preference” When the U.S. National Institutes of Health’s long-delayed “deep phenotyping” study of a handful of ME/CFS patients was released earlier this year, the focus on a weird construct called “effort preference” sucked up all the attention–in part because the paper placed it front and center, …

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Trial By Error: Athlete Oonagh Cousins on the Lightning Process

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By David Tuller, DrPH Oonagh Cousins, a world-class rower who once dreamed of representing Great Britain in the Olympics, got sick early in the pandemic and has been suffering from Long Covid ever since. Her story was first covered by the BBC in November, 2020. A BBC article last year covered how her condition had …

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Trial By Error: Betsy Ladyzhets on Problems with NIH’s RECOVER Initiative

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By David Tuller, DrPH Science journalist Betsy Ladyzhets, co-founder and co-editor of The Sick Times, has been covering the problemls with RECOVER, the $1.15 billion Long Covid initiative from the US National Institutes of Health. Ladyzhets recently wrote a new article about RECOVER, published in The Sick Times as well as STAT, based on documents …

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Trial By Error: Professor Esther Crawley, Bristol University’s Methodologically and Ethically Challenged Pediatrician, Has Retired From Medicine

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By David Tuller, DrPH Professor Esther Crawley, Bristol University’s methodologically and ethically challenged pediatrician and long-time grant magnet, gave up her right to practice medicine last September, according to her current entry at the UK’s General Medical Council, which oversees the registration of physicians. The entry does not offer an explanation for why Professor Crawley …

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Trial By Error: The Michael Sharpe Crowdfunding Effect

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By David Tuller, DrPH *This is a crowdfunding month for Trial By Error. Donations (tax-deductible to US tax-payers) go to the University of Calinfornia, Berkeley, to support the project. The link to the crowdfunding campaign is here: https://crowdfund.berkeley.edu/project/42302 In the past, Professor Michael Sharpe, one of the lead PACE investigators, has intervened in my Berkeley crowdfunding …

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Trial By Error: BBC Takes on Lightning Process and Highlights Perspectives of the So-Called “Anti-Recovery Activists”

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By David Tuller, DrPH *This is a crowdfunding month for Trial By Error. Donations (tax-deductible to US tax-payers) go to the University of Calinfornia, Berkeley, to support the project. The link to the crowdfunding campaign is here: https://crowdfund.berkeley.edu/project/42302 UPDATE: At the end of this post, I mentioned the patient in the BBC report who said she …

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