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By David Tuller, DrPH Two months ago, the UK’s National Institute for Health and Care Excellence (NICE) abruptly delayed publication of its new ME/CFS clinical guideline under fierce objections from the GET/CBT ideological brigades and their minions. Today (Monday, October 18th), the agency hosted a meeting to allow these powerful dissenters from some of the …

Trial By Error: Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline Read More »

By David Tuller, DrPH *October is crowdfunding month at Berkeley. I conduct this project as a senior fellow in public health and journalism at the university’s Center for Global Public Health. If you would like to support the project with a donation to Berkeley (tax-deductible for US taxpayers), here’s the place: https://crowdfund.berkeley.edu/project/27513 Two years ago, …

Trial By Error: North Bristol NHS Trust’s Biased Survey of Patients Attending “CFS/ME Specialist Services” Read More »

By David Tuller, DrPH I wrote a post last month about the recent wave of Long Covid coverage, some of it excellent (The Atlantic) and some way over the edge in its assertions of psychogenic causation of symptoms (The American Spectator, Spiked). Then there was the seemingly sympathetic New Yorker article by a physician, with …

Trial By Error: Professor Lubet’s Take on The New Yorker’s Long Covid Article Read More »

By David Tuller, DrPH Since the start of the coronavirus pandemic, suggesting an equivalence between COVID-19 and influenza has been a consistent approach among those seeking to downplay the current situation. So it’s not surprising to see something similar happen with comparisons between Long COVID and the delayed recovery some people experience after an acute …

Trial By Error: BBC’s Problematic Coverage of New Long COVID Study Read More »

By David Tuller, DrPH On September 1st, The Atlantic published another excellent piece by Ed Yong, €œLong-haulers are fighting for their future.€ In exploring how this population has confronted widespread misunderstanding in the medical community, the article highlighted the links between the experiences of Long Covid and ME/CFS patients by focusing on the crucial symptom …

Trial By Error: Good Long Covid Coverage from Atlantic; Skeptical Coverage from New Yorker and Others Read More »

By David Tuller, DrPH I have been focused lately on the continuing saga of the hijacked-and-still-unpublished ME/CFS clinical guidelines (HSUME/CFSCG) from Britain’s National Institute for Health and Care Excellence (NICE). The fate of the HSUME/CFSCG will apparently be addressed at an October so-called “roundtable” meeting of NICE and representatives from relevant interest groups. (I’m not …

Trial By Error: Advocates Propose Fixes to Dysfunctional US Coding System for ME, CFS and ME/CFS Read More »