By David Tuller, DrPH(This is a long-ish post. Sorry! It covers two complicated issues. I want to thank an intrepid source for help with this.) I have great sympathy for patients diagnosed with functional neurological disorder (FND). Their symptoms can be seriously disabling and their plight has long been neglected and dismissed by the medical …
By David Tuller, DrPH It is May 12th–ME International Awareness Day. (Or ME/CFS International Awareness Day if you’re the US Centers for Disease Control and Prevention. In Washington, DC, #MEAction and Body Politic have organized a protest and press conference “to demand bold, urgent governmental action for the millions of people living with myalgic encephalomyelitis …
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By David Tuller, DrPH David Putrino is a neuroscientist and physical therapist at New York’s Mt Sinai Health System, where he is director of rehabilitation innovation. Over the last three years, he has worked extensively with patients experiencing prolonged symptoms after an acute bout of Covid-19, or what has become known as long Covid (LC). …
By David Tuller, DrPH Last month, The Nation published a wide-ranging overview of the impact of long Covid on the United States by Fiona Lowenstein and Ryan Prior. Called The Long Covid Revolution, the article proposed a number of steps for addressing the fallout and highlighted the critical role of grass-roots patient movements in pushing …
By David Tuller, DrPH*April is crowdfunding month at UC Berkeley. If you like my work, consider making a tax-deductible donation to Berkeley’s School of Public Health to support the Trial By Error project: https://crowdfund.berkeley.edu/project/37217 On Tuesday, ZonMw announced the first grant recipients in its program of “biomedical research on ME/CFS”—the initial round of awards from the …
By David Tuller, DrPH ZonMw is an independent Dutch organization that receives significant government funding for a variety of healthcare-related research projects. On April 25th—tomorrow—it is expected to announce the recipients of €11.6 million in grants for ME/CFS research. This announcement regarding ZonMw’s ME/CFS program is the result of a lengthy process that began ten …
