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Trial By Error: Dutch Agency Funds CBT Training Program Based on Flawed Long COVID Trial

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By David Tuller, DrPH Here is how bullshit replicates itself in today’s medical world: Conduct a flawed trial, declare success despite serious questions, then develop health policy based on these hyped-up claims. ZonMW, a major Dutch healthcare funding agency, is supporting a new program led by Professor Hans Knoop, a longtime supporter of the fraudulent …

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Trial By Error: More on Norway’s Problematic Draft Guideline for “Long-Term Fatigue–including ME/CFS”

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By David Tuller, DrPH I posted a piece yesterday on Norway’s draft guideline for “long-term fatigue—including ME/CFS.” But my post was already outdated!  The draft guideline was written by a team from the Norwegian Directorate of Health and is open for public comment until May 4th. A working group of 25 individuals from a range …

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Trial By Error: Norway’s Problematic Draft Guideline Combining Long-Term Fatigue and ME/CFS

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By David Tuller, DrPH On February 4th, the Norwegian Directorate of Health published a draft of a “national professional guideline” for diagnosis, management and treatment of “long-term fatigue—including ME/CFS.” A consultation period for the draft lasts for three months. All comments must be received by May 4th.  The draft is intended to replace a 2015 …

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Trial By Error: Recent Readings–Another Severe Case, per The Times; Guardian’s Take on “Brain Retraining”; Boston Globe’s Long COVID Tale

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By David Tuller, DrPH Times coverage of another severe patient On February 15th, The Times covered the case of yet another patient with severe illness. The article, by health editor Eleanor Hayward, bore the headline “My body can take no more, says ME patient starving in hospital.” The subhead: “Campaigners say the suffering of Savannah …

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Trial By Error: Interview with Jonathan Edwards about “Therapy Guide” from British Association of Clinicians in ME/CFS

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By David Tuller, DrPH The British Association of Clinicians in ME/CFS, known as BACME, defines itself as “a multidisciplinary organisation providing information, resources, education and networking opportunities to UK professionals to deliver high quality care” to people with the illness. Its members include psychotherapists, physiotherapists, occupational therapists, physicians, and others involved in delivering services to patients. …

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Trial By Error: More on the Controversy over Invisible Illness

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By David Tuller, DrPH Emily Mendenhall’s new book, Invisible Illness: A History from Hysteria to Long COVID, has caused a bit of an uproar in some circles. Mendenhall, a medical anthropologist at Georgetown University in Washington, D.C., covers a range of what she calls “complex chronic illnesses,” including ME/CFS, fibromyalgia, Lyme disease, and so on. …

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