By David Tuller, DrPH Investigative journalist Betsy Ladyzhets is a co-founder of The Sick Times, a new online publication covering long Covid and related disorders. Last week, she wrote about a new grant program for long Covid clinics from the U.S. Agency for Healthcare Research and Quality (AHRQ), part of the Department of Health and …
Trial By Error: Betsy Ladyzhets on New HHS Funding for Long Covid Clinics Read More »
By David Tuller, DrPH Last Tuesday and Wednesday (December 12th and 13th), the US National Institutes of Health–and, specifically, the National Institute of Allergy and Infectious Diseases–held a two-day meeting called “Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID.” In 2019, I’d physically attended a similar NIH gathering; this time, I …
Trial By Error: #MEAction’s Jaime Seltzer on Recent NIH Gathering Read More »
By David Tuller, DrPH In August, I submitted a letter to NeuroImage: Clinical concerning inflated rates of prevalence of functional neurological disorder, on behalf of myself and nine colleagues. After the letter went through peer review and a round of revisions, I was informed in early November that it had been accepted, as I noted …
By David Tuller, DrPH A survey of more than 1500 patients in the Netherlands with a diagnosis of ME, CFS or ME/CFS rated graded exercise therapy as “the worst” interventions, according to an article on the site of the ME and Disability Support Group, while “explanation and advice about the importance of lying down to …
By David Tuller, DrPH In January, I wrote a piece for Codastory.com about Maeve Boothby O’Neill, a young woman from Devon, England, who died from ME-related complications in October, 2021, at the age of 27. This week, at a pre-inquest hearing, it was revealed that the medical director of the hospital involved in Maeve’s care …
By David Tuller, DrPH Earlier this month, Betsy Ladyzhets and Miles Griffis, two smart, young American journalists, announced the launch The Sick Times, an online publication focused on long Covid and related post-acute infection syndromes, including ME/CFS. I have met both of them in the last couple of years and have been impressed with their …
Trial By Error: Interview with Founders of The Sick Times, a New Online Publication Read More »
