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Trial By Error: Professor Chris Ponting Discusses on DecodeME’s First Results

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By David Tuller, DrPH Professor Chris Ponting is a geneticist at the University of Edinburgh. He is also the principal investigator for DecodeME, a genome wide association study. The DecodeME team recently published findings from more than 17,000 questionnaires it had collected from patients. I wrote about those findings in a post last week. In …

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Trial By Error: DecodeME Team Describes Study Sample; The Atlantic’s Ed Yong Covers PEM; STAT Busts NIH’s Stumbling Long Covid Efforts

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By David Tuller, DrPH Update: The post indicates that more than 17,000 people had submitted the DecodeME questionnaire. Actually, as of the most recent count this month, DecodeME has now received more than 23,000 questionnaires. DecodeME paper finds ME/CFS severity linked to being female, being older and being sick longer DecodeME is a high-profile genome-wide …

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Trial By Error: Rapid Response to Anti-NICE Whine de Coeur; UK Government Seeks Input to Interim Delivery Plan for ME/CFS

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By David Tuller, DrPH The Journal of Neurology, Neurosurgery, and Psychiatry (JNNP) has finally published a cogent rapid response to its recent whine de coeur from the PACE authors and their cronies. In the commentary, the co-authors criticized eight purported “anomalies” they believe occurred during the process of developing the 2021 ME/CFS guideline from Britain’s …

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Trial By Error: More on the Perplexing Dutch Claim that Null Results for Objective Measures of Physical Activity Are Irrelevant to Fatigue

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By David Tuller, DrPH I recently wrote about a Dutch study published a few months ago in the journal Clinical Infectious Diseases–“Efficacy of Cognitive-Behavioral Therapy Targeting Severe Fatigue Following Coronavirus Disease 2019: Results of a Randomized Controlled Trial.” The study, nick-named ReCOVer, found that unblinded trials relying on subjective outcomes will produce modestly positive reports …

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Trial By Error: That Whine De Coeur about NICE’s Rejection of GET/CBT Regimen, and ME Action UK’s Disappearing Rebuttal

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By David Tuller, DrPH On July 10th, the Journal of Neurology, Neurosurgery, and Psychiatry (JNNP) published what can only be called a whine de coeur from a bunch of academics and investigators on the wrong side of a dispute with Britain’s National Institute for Health and Care Excellence (NICE). Their article was called “Anomalies in …

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Trial By Error: Psych Medicine’s Rejects Request for Correction of Prevalence Rates Cited in FND Paper–Updated

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By David Tuller, DrPH UPDATE: Not long after I sent the letter repeating our request for a correction, I received a response directly from Professor Murray, the editor-in-chief of Psychological Medicine who had commented on the length of our initial request for a correction. Here it is: From: Robin Murray Date: Thu, Jul 20, 2023 at 9:02 AMSubject: …

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