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Trial By Error: Interview with Jonathan Edwards about “Therapy Guide” from British Association of Clinicians in ME/CFS

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By David Tuller, DrPH The British Association of Clinicians in ME/CFS, known as BACME, defines itself as “a multidisciplinary organisation providing information, resources, education and networking opportunities to UK professionals to deliver high quality care” to people with the illness. Its members include psychotherapists, physiotherapists, occupational therapists, physicians, and others involved in delivering services to patients. …

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Trial By Error: More on the Controversy over Invisible Illness

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By David Tuller, DrPH Emily Mendenhall’s new book, Invisible Illness: A History from Hysteria to Long COVID, has caused a bit of an uproar in some circles. Mendenhall, a medical anthropologist at Georgetown University in Washington, D.C., covers a range of what she calls “complex chronic illnesses,” including ME/CFS, fibromyalgia, Lyme disease, and so on. …

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Trial By Error: Some Things I’ve Read Recently…Maryland Boosts LC Research, van der Zee on CBT, Thoughts on Hope and Chronic Illness

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By David Tuller, DrPH My rib injury sidelined me for a month. Now that I’m mostly better, I’ve been trying to get back up to speed and catch up with lots of lots of reading (and some viewing). Here are a few items that caught my eye. Maryland seeks to boost Long COVID research, per …

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Trial By Error: New Medical Anthropology Book on Chronic Illness Triggers Controversy

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By David Tuller, DrPH While I was on medical leave for the last few weeks, the fascist regime’s brownshirts executed two people protesting the military occupation of Minneapolis. (It seems important to make that point before anything else.) Of course, other stuff has been happening too. In the domain of common interest here, a new …

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Trial By Error: My Unexpected E-Mail Exchange with Alem Matthees

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By David Tuller, DrPH In recent months, one of the most high-profile people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)—Australian Alem Matthees—has reported significant improvement in his condition. He is still bed-bound, and is still not speaking. This is not, by any means, “recovery.” Nonetheless, the change in Alem’s ability to read, consume information and communicate …

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