By David Tuller, DrPH Update: 6/26/18 When I wrote last week in the post below about Mike Godwin’s intervention into the PACE debate, I mentioned that “a PACE critic” triggered the events by tweeting a reference to “the banality of evil”–the famous Hannah Arendt phrase that emerged out of her coverage of the trial of …
By David Tuller, DrPH Two weeks ago I sent an e-mail to Sir Andrew Dillon and Professor Mark Baker alerting them of problems with the Lightning Process study published last year in Archives of Disease in Childhood. The two men are members of the NICE Guidance Executive and have a hand in the current process …
Trial By Error: BMJ Still “Looking Into” Lightning Process Paper Read More »
By David Tuller, DrPH Earlier this month, in advance of a stakeholder meeting, the U.K.’s National Institute for Health and Care Excellence released a draft scoping report. The document outlined the issues slated to be addressed by the committee selected to develop the new guidance for the illness NICE now calls ME/CFS. (The 2007 guidance …
Trial By Error: NICE’s Consideration of the Lightning Process Read More »
By David Tuller, DrPH Saturday, May 12th, is International ME Awareness Day. (It’s also International Fibromyalgia Awareness Day, and the same for Gulf War Illness and Multiple Chemical Sensitivity. But here we’re mostly focused on the first.) This day in the calendar was adopted years ago as an opportunity to promote the visibility of neuro-immune …
Trial By Error: May 12th-International ME Awareness Day Read More »
By David Tuller, DrPH During my week in Perth, I visited Alem Matthees twice. Alem is the patient who successfully fought Queen Mary University of London for access to raw PACE trial data; reanalyses of these data have exposed how the extensive outcome-switching led to the improved results reported by the investigators.
By David Tuller, DrPH And now, from our good friends in the psychology department at the University of Bath, comes the shopping bag study we’ve all been waiting for. Here’s some information recently disseminated by the university: The purpose of this study is to look at how people with CFS/ME respond when asked to do …
Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website Read More »
