By David Tuller, DrPH Given that Oxford Health NHS Foundation Trust has removed the coronavirus-and-fatigue pamphlet containing the antidiluvian medical advice, I have sent a freedom-of-information request to follow up on one I sent the other day. **********
By David Tuller, DrPH In this traumatic time, small victories should be savored. Last week, I noticed a tweet from patient and advocate Tom Kindlon about a pamphlet from the Oxford Health NHS Foundation Trust, the entity that oversees NHS services in the Oxford region. Other patients and advocates also flagged it on social media …
Trial By Error: Oxford Health Blinks, Removes Pamphlet on Post-COVID Illness Read More »
If you appreciate this piece and/or my work in general, here’s a link to my current UC Berkeley crowdfunding effort: https://crowdfund.berkeley.edu/project/20159 ********** By David Tuller, DrPH As I reported yesterday (oops!–it was Thursday, not yesterday–this is a correction made a few minutes after posting!), the Oxford Health NHS Foundation Trust, which oversees NHS services in the …
Trial By Error: My FOI Letter about Oxford’s Post-COVID-19 Fatigue Pamphlet Read More »
By David Tuller, DrPH On the Mahana Therapeutics website, Robert Paull, the CEO and co-founder, explains in a statement that his personal interest in developing treatments for GI problems arose out of the longtime suffering of a family member. His account is heartfelt and compelling. Unfortunately, Mr Paull and his company have placed their bets …
Trial By Error: A Follow-Up to the Follow-Up Letter to Mahana Read More »
If you appreciate this piece and/or my work in general, here’s a link to my current UC Berkeley crowdfunding effort: https://crowdfund.berkeley.edu/project/20159 ********** By David Tuller, DrPH Since the coronavirus epidemic hit, people with ME have been concerned about the possibility of a secondary wave of post-COVID-19 cases of prolonged disease–especially given emerging evidence of neurological complications …
Trial By Error: Oxford-NHS Recommends GET/CBT for Post-COVID “CFS” Patients Read More »
By David Tuller, DrPH As the world continues to wrestle with the coronavirus epidemic, President Trump is calling on us here in the US to get back to work. So I decided to start seeking answers again from Mahana Therapeutics, which announced in January that it had licensed a web-based cognitive behavior therapy program for …
Trial By Error: Revisiting Mahana and Irritable Bowel Syndrome… Read More »
