By David Tuller, DrPH People with ME/CFS differ genetically from the general population, according to the long-awaited results of the largest biological study of the disease to date. By comparing DNA samples from more than 15,000 patients with ME/CFS diagnoses to samples from those who were not diagnosed, the investigators identified eight “genetic signals,” including …
By David Tuller, DrPH NOTE: Dr Zachary Grin, a physical therapist in New York City who specializes in functional neurological disorder (FND), left an interesting comment. I am re-posting it up here, with my response: Dr Grin: “David has misinterpreted the authors. They said “…functional impairment may lead to…”. Functional impairment refers to the limitation/loss …
By David Tuller, DrPH A coroner in west England has called out the shortage of services for those with severe ME after conducting an inquest into the case of a woman with the illness who committed suicide last summer. The coroner for the Avon area, Debbie Rookes, prepared what is called a Regulation 28 Report …
By David Tuller, DrPH Social Science & Medicine (SSM) is a prominent interdisciplinary journal that publishes social science research related to health. A recently published SSM paper is called “Chronicity rhetoric in health and welfare systems inhibits patient recovery: a qualitative, ethnographic study of fibromyalgia care.” Part of a larger, multi-partner, Oxford-based project called Patient-centred …
By David Tuller, DrPH *NOTE: Kim, an FND patient and advocate, has left an extensive set of criticisms in the comments. I urge those interested in this debate to read them. A recently published study about functional neurological disorder (FND) has reported some perplexing data. Of almost 300 patients diagnosed with Long Covid, 100 were …
By David Tuller, DrPH Sander Zurhake is an investigative reporter for Nederlandse Omroep Stichting (NOS), a major Dutch broadcasting organization. On May 30th, NOS released television, radio and online reports about the potential harms of psycho-behavioral treatments for children with ME/CFS. In particular, the stories focused on the kind of cognitive behavior therapy (CBT, although …
Trial By Error: Interview with Dutch Journalist Sander Zurhake Read More »
