By David Tuller, DrPH Adam Lowe, a patient, was one of five lay people on the committee pulled together by Britain’s National Institute for Health and Care Excellence to work on the new ME/CFS guideline. He and I spoke recently on Zoom about his role in the process.
By David Tuller, DrPH The October 29th publication of the new guideline for ME/CFS from Britain’s National Institute for Health and Care Excellence (NICE) represented an enormous and humiliating repudiation of the PACE trial and the many related studies of cognitive behavior therapy (CBT) and graded exercise therapy (GET) as treatments for the illness. That …
Trial By Error: New Paper From PACE Authors Repeats Bogus Arguments and Defenses Read More »
By David Tuller, DrPH In late October, the UK’s National institute for Health and Care Excellence (NICE) released its new ME/CFS guideline, which specifically recommend against graded exercise therapy (GET) and a specialized form of cognitive behavior therapy (CBT). Last week, I wrote about how King’s College London continues to host a page on “CBT …
By David Tuller, DrPH For years, London’s Science Media Centre has fiercely promoted research into graded exercise therapy (GET) and cognitive behavior therapy (CBT) for the illness or cluster of illnesses variously referred to as chronic fatigue syndrome, myalgic encephaloymyelitis, CFS/ME, ME/CFS, and other names. Some of the prominent experts in this field have had …
Trial By Error: Is Something Shifting at the Science Media Centre? Read More »
By David Tuller, DrPH It is hard enough to write when you’re feeling healthy. So I’m in awe of people who manage to write despite suffering from a debilitating chronic illness, especially one that messes around with cognitive functioning. That number includes some ME patients who have written novels. (I don’t write fiction; I have …
By David Tuller, DrPH A week ago, Britain’s National Institute for Health and Care Excellence published its new, evidence-based guideline for ME/CFS, which recommended against graded exercise therapy and cognitive behavior therapy offered as curative rather than as supportive care. Not surprisingly, this event creates some public relations problems for members of the CBT/GET ideological …
