Author name: David Tuller

Trial By Error: Interview with Columbia’s Ian Lipkin on Heightened Immune Response in ME/CFS, Funding Challenges, and Current Research

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By David Tuller, DrPH Last week, a research team from Columbia University’s Center for Infection and Immunity published a paper called “Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS,” in the journal npj Metabolic Health and Disease. The senior investigator, Dr. W. Ian Lipkin, is director of the center and …

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Trial By Error: Australian Investigators Blame ME/CFS Patient Advocates for Poor Recruitment in “Active Video Gaming” Trial

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By David Tuller, DrPH In a new paper, a team of investigators from the University of South Australia in Adelaide, Australia, describes a “pilot feasibility” trial for an ME/CFS intervention focused on physical activity. The trial fell dramatically short on recruitment efforts—a failure that the investigators appear to explicitly blame on the patient community rather …

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Trial By Error: A (Satirical) Field Guide to Conducting Biopsychosocial Research in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME)

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By David Tuller, DrPH A reader from Belgium sent me the following (satirical) paper she’d written for the “Journal of Entrenched Paradigms.” I found it entertaining, well-written, and on-target, and figured others would as well. It offers a sharp assessment of some of the favorite methodological strategies of members of the CBT/GET ideological brigades. I …

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Trial By Error: Three Blogs–Julie Rehmeyer on Beth Mazur’s Death; Whitney Dafoe on Real Life; Elke Hausmann on Exercise and “The Salt Path”

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By David Tuller, DrPH Two years ago, Beth Mazur, who co-founded #MEAction and spent years advocating for better care and more research, died by suicide during a stay with her close friend and fellow person with ME, Julie Rehmeyer. It is hard to imagine what feels unimaginable—the shock and pain of finding the body of …

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Trial By Error: Letter to eClinicalMedicine about Exercise Recommendations in Flawed Meta-Analysis of Long COVID Interventions

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By David Tuller, DrPH A journal under the Lancet umbrella, eClinicalMedicine, recently published a study from China called “Effects of therapeutic interventions on long COVID: a meta-analysis of randomized controlled trials.” (I wrote about it here.) The authors themselves determined that most of the research they included was, to be charitable, on the crappy side. …

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Trial By Error: Hungarian Experts Make Goulash out of NICE Guidelines

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By David Tuller, DrPH In April, the Hungarian journal Orvosi Hetilap [Medical Weekly] published an article called “Interdisciplinary consensus statement about the diagnosis and treatment of chronic fatigue syndrome/myalgic encephalomyelopathy.” The goal, according to the abstract, “is to provide appropriate information for professionals working in the Hungarian health care system: physicians, psychologists, physiotherapists, and dietitians.” …

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