By David Tuller, DrPH The long Covid narrative seems to bounce back and forth with each new study or review documenting contrasting findings—evidence of serious pathophysiological anomalies among sub-sets of patients followed by data that appear to implicate psychological and/or emotional factors in the generation of reported symptoms. A new study in JAMA Network Open …
By David Tuller, DrPH Note: I posted this on March 29th, and for some reason it disappeared from the site–so I am reposting it today. I have written previously about the issue of exercise studies for long Covid patients. As with the discredited PACE trial for the illness or cluster of illnesses currently being referred …
By David Tuller, DrPH In 2019, the University of Bristol and the UK’s Health Research Authority issued a report about their joint investigation of 11 papers. The lead investigator of all 11 papers was Professor Esther Crawley, Bristol’s methodologically and ethically challenged pediatrician and grant queen. The report recommended that Professor Crawley correct the ethics …
By David Tuller, DrPH What is going on with Cochrane’s much-delayed re-review of exercise therapy for the illness the organization is these days calling ME/CFS? It is more than three years since Cochrane announced plans to develop this completely new review, but no one outside the organization seems to have much idea of what’s happening …
By David Tuller, DrPH The Collaborative on Fatigue Following Infection, or COFFI, was formed in 2015 to promote the theories and treatment approaches embodied in the now-discredited and arguably fraudulent PACE trial and related research. In a nutshell, PACE and related research promoted the notion that the symptoms of patients with the clinical entity or …
By David Tuller, DrPH Last April, I interviewed poet, journalist and editor Meghan O’Rourke about The Invisible Kingdom, her insightful and affecting memoir of living with chronic illness. The book, a New York Times bestseller and a finalist for the National Book Award, has just been issued in paperback. So I figured I’d re-post the interview. As the …
