By David Tuller, DrPH Karen Hargrave is co-founder of an advocacy campaign called #ThereForME, which was launched this past summer to draw public awareness to the UK’s lack of care and treatment and to call “for an NHS [National Health Service] that’s there for people with ME and Long Covid.” The campaign has drawn significant …
Trial By Error: Interview with Karen Hargrave, Co-Founder of #ThereForME Read More »
By David Tuller, DrPH I have recovered sufficiently from my post-election coma to send off another of my irritating letters to journals–this one to The BMJ. As I mentioned in a post earlier this week, The BMJ has corrected a major paper: “Clinical effectiveness of an online supervised group physical and mental health rehabilitation programme …
By David Tuller, DrPH Along with several colleagues, Professor Chris Ponting, a geneticist at the University of Edinburgh and a leading ME/CFS researcher, recently posted a pre-print called “Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity.” (A pre-print is a paper that has not yet been formally peer-reviewed.) For this analysis, the investigators …
By David Tuller, DrPH In February, The BMJ published a study called Clinical effectiveness of an online supervised group physical and mental health rehabilitation programme for adults with post-covid-19 condition (REGAIN study): multicentre randomised controlled trial.” (Post-Covid-19 Condition, or PCC, is one of many current definitions for Long Covid.)The study, led by a team from …
By David Tuller, DrPH Last month, I took a quick speaking tour around Ireland at the invitation of the Irish ME/CFS Association. I first became acquainted with Tom Kindlon, the association’s assistant chairperson, about ten years ago. I was beginning to look into the background of the PACE trial, which purported to have proven the …
Trial By Error: My Tour of Ireland, Through Wind and Rain; Slides of My Talk Read More »
By David Tuller, DrPH October is a crowdfunding month at University of California, Berkeley. If you’d like to support my work, you can make a donation to the university (tax-deductible for US taxpayers) here. Last week, Guardian columnist George Monbiot wrote another scathing piece about the failure of the UK health care system to address the …
