Author name: David Tuller

Trial By Error: Families with Long Covid Kids Fight Against Medical/Social Services

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By David Tuller, DrPH For decades in the UK, parents of children with what was formerly called chronic fatigue syndrome have run the risk of being accused of making or keeping their kids sick and/or not pursuing proper treatment strategies. These cases have been based on the discredited belief that graded exercise therapy (GET) and …

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Trial By Error: FND Experts Agree To Correct Inflated Prevalence Claim

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By David Tuller, DrPH For years, experts in functional neurological disorder (FND) have cited a seminal study in their field to claim that the diagnosis was the second-most-common presentation at outpatient neurology clinics, with a prevalence of 16%. This claim was, and is, categorically untrue. The Scottish Neurological Symptoms Study (SNSS), which yielded multiple papers …

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Trial By Error: Action For ME Report on NICE Guidelines; Brian Hughes on Myths About the Guidelines; Michael Sharpe’s San Francisco Speech

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By David Tuller, DrPH I often feel so far behind in keeping up with developments in this field. Here are a few recent items I wanted to highlight. **********Action For ME’s report on NHS adoption of the new NICE guidelines In October, 2021, after a protracted and highly contentious process, the UK’s National Institute for …

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Trial By Error: Claim that CBT Is Safe Is “Misleading,” Says Dutch Ad Group

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By David Tuller, DrPH In a recent decision, the Advertising Code Foundation in the Netherlands has criticized as “misleading” a statement on the website of the Knowledge Center for Chronic Fatigue (NKCV) touting its treatment approach as “not harmful.” The decision is something of a slap at the NKCV and its co-leader, Professor Hans Knoop, …

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Trial By Error: Author Michael Alenyikov on ME and the Writing Life

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By David Tuller, DrPH Michael Alenyikov was the first person I knew with ME, or what was then being called CFIDS—chronic fatigue immune disorder syndrome. We met in the mid-1980s in NY—we were younger then!—and we both moved to San Francisco in the 1990s. Michael trained as a clinical psychologist but switched his professional focus …

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Trial By Error: A Letter Regarding Inflated Prevalence Rates for Functional Neurological Disorder

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By David Tuller, DrPH I have posted previously about how papers on functional neurological disorder (FND) have routinely mis-cited a seminal 2010 study in asserting that the diagnosis is the second-most-common presentation at neurology clinics, with a rate of 16%. In fact, the 2010 study found that only 5.5% had FND, the new name for …

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