By David Tuller, DrPH So I’ve been in Australia for a week. In Melbourne on Friday, I was happy to spend a couple of hours with Emerge Australia, the local ME/CFS advocacy group. We had video glitches so there is not a continuous tape of the discussion, but here’s a link to at least the …
Trial By Error: Checking in from Melbourne and Canberra… Read More »
By David Tuller, DrPH So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope McMillan, the …
Trial By Error: The Australian Situation, and Professor Crawley’s New Position Read More »
By David Tuller, DrPH And now some potentially good news from the Netherlands. Two years ago, the Dutch parliament asked the Health Council, an independent scientific advisory body, to review the state of evidence related to the illness generally called chronic fatigue syndrome in the Netherlands. That review was to include the evidence for rehabilitative …
Trial By Error: The Dutch Review; My Trip; Bristol’s Silence Read More »
By David Tuller, DrPH Two pieces of news dominated yesterday’s announcement from the CFS/ME Research Collaborative: First, the group is narrowing its scope of activities to focus on promoting “the discovery of the biological mechanisms that underpin CFS/ME.” Second, Professor Esther Crawley is not only stepping down as deputy chair of the executive board but …
Trial By Error: Yesterday’s News from the CFS/ME Research Collaborative Read More »
By David Tuller, DrPH On January 30th, Professor Racaniello e-mailed a letter of concern to Archives of Disease in Childhood about a clinical trial of the Lightning Process in children with CFS/ME (as the study called the illness.) The letter, signed by 21 experts and academics, documented the trial’s questionable methodological choices and the investigators’ …
Trial By Error: My Exchange With Archives of Disease in Childhood Read More »
By David Tuller, DrPH So I’ve been asked about my plans after June 30th, which is the end of the period covered by last year’s crowdfunding campaign. There’s been significant progress since I launched that effort. Among other developments, the CDC dropped its recommendations for CBT and GET, NICE decided to withdraw its preliminary reaffirmation …
