By David Tuller, DrPH Saturday, May 12th, is International ME Awareness Day. (It’s also International Fibromyalgia Awareness Day, and the same for Gulf War Illness and Multiple Chemical Sensitivity. But here we’re mostly focused on the first.) This day in the calendar was adopted years ago as an opportunity to promote the visibility of neuro-immune …
Trial By Error: May 12th-International ME Awareness Day Read More »
By David Tuller, DrPH During my week in Perth, I visited Alem Matthees twice. Alem is the patient who successfully fought Queen Mary University of London for access to raw PACE trial data; reanalyses of these data have exposed how the extensive outcome-switching led to the improved results reported by the investigators.
By David Tuller, DrPH A Brief Update: Berkeley’s crowdfunding period closed on April 30th–Monday night. I ended the campaign with $87,580. After Berkeley’s 7.5% in fees, the funds will cover my salary/benefit from July 1, 2018 to June 30, 2019, and some travel costs. I really, really appreciate the fantastic support. Thanks to everyone! I’ve …
Trial By Error: A Q-and-A with Leonard Jason, on Case Definition Read More »
By David Tuller, DrPH I’m now at the airport in Sydney waiting for my 12:45 pm flight back home. I arrive in San Francisco at 9:30 am this morning, -gotta love that one-day time change, at least in the eastward direction! I’ve had an amazing six weeks here. I met lots of new friends, connected …
Trial By Error: Goodbye, Australia; and Two Updates Read More »
By David Tuller, DrPH This post is sort of long and complicated, but I think the details are important given Andrew Lloyd’s outsized role in the ME/CFS domain in Australia. I urge patients to take care not to over-exert themselves in reading it! **********
By David Tuller, DrPH And now, from our good friends in the psychology department at the University of Bath, comes the shopping bag study we’ve all been waiting for. Here’s some information recently disseminated by the university: The purpose of this study is to look at how people with CFS/ME respond when asked to do …
Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website Read More »
