By David Tuller, DrPH The National Institute for Health and Care Excellence, the U.K. organization that develops clinical guidelines for medical conditions, has rejected my freedom-of-information request for the names of the experts involved in the reassessment of the guidance for the illness it calls CFS/ME. This isn’t surprising, since the agency also recently rejected …
By David Tuller, DrPH The Countess of Mar, a well-known advocate for ME/CFS patients in the House of Lords, has received a negative response to her request for the names of the experts involved in the review of the NICE guideline for CFS/ME. The ME Association has not yet received a response related to the …
Trial by Error: NICE Declines to Disclose Names of Experts Read More »
By David Tuller, DrPH This month, the U.K. organization currently assessing whether to update the clinical guidelines for the illness it calls CFS/ME is seeking input from stakeholders in the process. Unfortunately, that’s not good news, it’s bad news. Why? The National Institute for Health and Care Excellence, or NICE, is an independent body that …
Trial by Error: The NICE guidelines, and more on the CDC Read More »
By David Tuller, DrPH This is the beginning of a new phase for Trial by Error. I initially assumed that my work on PACE and ME/CFS (or ME, or CFS/ME, or CFS) would be a one-off investigation, and then I’d move on to other projects. But after my 15,000-word series was posted on Virology Blog …
by Steven Lubet On 1 June 2017, Professor Michael Sharpe presented the Special Ethics Seminar at Oxford University’s St Cross College. In his posted abstract, he asserted that some areas of scholarship are politicised (U.K. spelling in original), including the role of psychiatric or psychological approaches in the treatment of ME/CFS patients. Sharpe also likened ME/CFS …
Trial by Error, Guest Post: Questions About Professor Sharpe’s ‘Special Ethics Seminar’ Read More »
By David Tuller, DrPH [June 30, 2017: This post has been corrected and revised.] Professor Peter White and colleagues have published yet another study in The Lancet promoting graded exercise as an appropriate intervention for the illness they refer to as chronic fatigue syndrome but that is more appropriately called myalgic encephalomyelitis. (Two compromise terms, …
Trial by Error, Continued: More on Graded Exercise from Peter White and The Lancet Read More »
