Trial By Error: Interview with Dr Peter Rowe of Johns Hopkins about “Living with Orthostatic Intolerance”

By David Tuller, DrPH

Dr Peter Rowe is a professor of pediatrics at the Johns Hopkins School of Medicine and director of the Chronic Fatigue Clinic at the Johns Hopkins Children’s Center. As an expert on orthostatic intolerance, a common component of ME/CFS, Long Covid and related illnesses, he has recently authored “Living Well with Orthostatic Intolerance: A Guide to Diagnosis and Treatment,” published by Johns Hopkins University Press. We recently spoke about the book. (Dr Rowe is donating any personal proceeds from the book to his pediatric Chronic Fatigue Clinic.)

3 thoughts on “Trial By Error: Interview with Dr Peter Rowe of Johns Hopkins about “Living with Orthostatic Intolerance””

  1. That’s the best explanation I’ve heard that explains the many facets of Orthostatic Intolerance.
    Thank you for the interview

  2. That was very interesting. I’ve ordered the book.
    I suddenly couldn’t walk in spring 2013, could only crawl a meter or so then fell asleep. I ended up taking betablockers for dental visit anxiety and found I could stand up and walk a meter. Stopped taking them as it masked the PEM but began again when another tooth was taken out. Since then I’ve stayed on them (about 5 years) and I am thrilled they enable me to walk around the house a bit, but I still can’t sit with legs down. I’m hoping your book has something in it that’ll help me with that, cos I’d love to be able to drive again, and I will never be able to if I have to sit without outstretched legs. Plus who knows where fixing the OI might get me!!!! Maybe back to moderate and even able to work part time… It’s all very exciting. Thankyou both!

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