David Tuller
Trial By Error: Keystone Gathering Update; Anil’s Severe ME Day Video; Fractured Care for Post-Infectious Illness
By David Tuller
By David Tuller, DrPH Keystone gathering round-up from Sick Times Many prominent Long COVID researchers gathered in Santa Fe, New Mexico, last week to discuss ongoing research and brainstorm in efforts to advance the field at the second Keystone Symposia on Long COVID and other post-acute infection syndromes. The first ...
Trial By Error: Lancet Paper Claims “Exercise” Should be “Prioritized” in Long COVID Rehabilitation
By David Tuller
By David Tuller, DrPH Added: On X, @mecfsskeptic has posted a very useful thread explaining how loosely the investigators applied the meaning of "Long COVID" in accepting trials for their meta-analysis. ********** A Lancet journal, eClinicalMedicine, has just published a paper called “Effects of therapeutic interventions on long COVID: a ...
Trial By Error: DecodeME Pre-Print Reports Eight “Genetic Signals” Related to Immune Function and Nervous System
By David Tuller
By David Tuller, DrPH People with ME/CFS differ genetically from the general population, according to the long-awaited results of the largest biological study of the disease to date. By comparing DNA samples from more than 15,000 patients with ME/CFS diagnoses to samples from those who were not diagnosed, the investigators ...
Trial By Error: BMJ’s “Commissioned” Propaganda Piece Hijacked Death of Maeve Boothby O’Neill; Boothby O’Neill’s Mum Responds
By David Tuller
By David Tuller, DrPH NOTE: Dr Zachary Grin, a physical therapist in New York City who specializes in functional neurological disorder (FND), left an interesting comment. I am re-posting it up here, with my response: Dr Grin: "David has misinterpreted the authors. They said “…functional impairment may lead to…”. Functional ...
Trial By Error: After ME-Related Suicide, Second Coroner in England Issues “Report to Prevent Future Deaths”
By David Tuller
By David Tuller, DrPH A coroner in west England has called out the shortage of services for those with severe ME after conducting an inquest into the case of a woman with the illness who committed suicide last summer. The coroner for the Avon area, Debbie Rookes, prepared what is ...