By David Tuller, DrPH Beth Mazur was a long-time ME advocate and a co-founder of #MEAction. ME-world was shocked to learn on Friday--two days ago--that she was gone, at the unconscionably young age of 47. At the time, she was visiting New Mexico and Julie Rehmeyer, another patient and advocate. ...

By David Tuller, DrPH Investigative journalist Betsy Ladyzhets is a co-founder of The Sick Times, a new online publication covering long Covid and related disorders. Last week, she wrote about a new grant program for long Covid clinics from the U.S. Agency for Healthcare Research and Quality (AHRQ), part of ...

By David Tuller, DrPH Last Tuesday and Wednesday (December 12th and 13th), the US National Institutes of Health--and, specifically, the National Institute of Allergy and Infectious Diseases--held a two-day meeting called "Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID." In 2019, I'd physically attended a similar ...

By David Tuller, DrPH In August, I submitted a letter to NeuroImage: Clinical concerning inflated rates of prevalence of functional neurological disorder, on behalf of myself and nine colleagues. After the letter went through peer review and a round of revisions, I was informed in early November that it had ...

By David Tuller, DrPH A survey of more than 1500 patients in the Netherlands with a diagnosis of ME, CFS or ME/CFS rated graded exercise therapy as “the worst” interventions, according to an article on the site of the ME and Disability Support Group, while “explanation and advice about the ...