David Tuller
Trial By Error: #MEAction’s Jaime Seltzer on Recent NIH Gathering
By David Tuller
By David Tuller, DrPH Last Tuesday and Wednesday (December 12th and 13th), the US National Institutes of Health--and, specifically, the National Institute of Allergy and Infectious Diseases--held a two-day meeting called "Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID." In 2019, I'd physically attended a similar ...
Trial By Error: Update on Our Letter Concerning the Prevalence of Functional Neurological Disorder
By David Tuller
By David Tuller, DrPH In August, I submitted a letter to NeuroImage: Clinical concerning inflated rates of prevalence of functional neurological disorder, on behalf of myself and nine colleagues. After the letter went through peer review and a round of revisions, I was informed in early November that it had ...
Trial By Error: Dutch Survey Respondents Rate GET/CBT as “the Worst” Approach, Per New Report
By David Tuller
By David Tuller, DrPH A survey of more than 1500 patients in the Netherlands with a diagnosis of ME, CFS or ME/CFS rated graded exercise therapy as “the worst” interventions, according to an article on the site of the ME and Disability Support Group, while “explanation and advice about the ...
Trial By Error: NHS Lacks Policy on Severe ME, Per Testimony in Pre-Inquest Hearing on Death of Maeve Boothby O’Neill
By David Tuller
By David Tuller, DrPH In January, I wrote a piece for Codastory.com about Maeve Boothby O’Neill, a young woman from Devon, England, who died from ME-related complications in October, 2021, at the age of 27. This week, at a pre-inquest hearing, it was revealed that the medical director of the ...
Trial By Error: Interview with Founders of The Sick Times, a New Online Publication
By David Tuller
By David Tuller, DrPH Earlier this month, Betsy Ladyzhets and Miles Griffis, two smart, young American journalists, announced the launch The Sick Times, an online publication focused on long Covid and related post-acute infection syndromes, including ME/CFS. I have met both of them in the last couple of years and ...