ME/CFS

Trial By Error: An Excerpt from Jamison Hill’s Memoir

By David Tuller, DrPH Three years ago, The New York Times‘ popular Modern Love column published a beautifully written tear-jerker by Jamison Hill–a former bodybuilder with ME. The column, “Love Means Never Having to Say…Anything,” described in tender prose how two people with debilitating chronic illness were able to find and nurture a very special …

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Trial By Error: Professor Lubet’s Inquiry to Medical Center Holding ME/CFS Patient

By David Tuller, DrPH Yesterday, I posted my exchange with a spokeswoman for Hennepin Healthcare about Thane Fredrickson, the ME/CFS patient who is under threat of involuntary psychiatric commitment. Today, Northwestern University law professor Steven Lubet, e-mailed her the following letter. ********** Dear Ms. Hill: I am a law professor at Northwestern University in Chicago, …

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Trial By Error: My Exchange with Minnesota Medical Center Holding ME/CFS Patient

By David Tuller, DrPH On Monday afternoon, I had an e-mail exchange with Christine Hill, a spokeswoman for the Hennepin Healthcare in Minnesota. Thane Fredrickson, an ME/CFS patient, is currently under threat of involuntary psychiatric commitment. Because of patient privacy concerns, it was clear the medical center would not be able to provide any specific …

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Trial By Error: Swedish ME Patient Fears Forced Psychiatric Treatment

By David Tuller, DrPH Holger Klintenberg, a 35-year-old from the southern Swedish city of Jonkoping, has severe ME. His illness began after a bout of mononucleosis (or glandular fever) when he was 19. He has recently experienced difficult interactions with the health care system. His family fears he could be forced into psychiatric care against …

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Trial By Error: My Zoom-Talk on the NICE Draft for Sheffield ME Group

By David Tuller, DrPH On Monday, I gave a Zoom-talk hosted by the Sheffield ME & Fibromyalgia Group on the new draft of ME/CFS clinical guidelines from UK’s National Institute of Health and Care Excellence. The draft rejected the GET/CBT treatment paradigm. I haven’t watched the video, but most likely one of my eyebrows is …

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Trial By Error: BMJ Retracts Music Therapy-CBT Study, But…

By David Tuller, DrPH *October is crowdfunding month at Berkeley. I conduct this project as a senior fellow in public health and journalism and the university’s Center for Global Public Health. If you would like to support the project, here’s the place: https://crowdfund.berkeley.edu/project/22602 I have written many posts this year about a Norwegian study of cognitive …

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