ME/CFS

Trial By Error: Q-and-A with Natalie Boulton, Director of “Dialogues for a Neglected Illness”

By David Tuller, DrPH More than ten years ago, Natalie Boulton and her son, Josh, made a film called “Voices from the Shadows,” about the plight of ME patients. Natalie, from Bristol, England, was intimately familiar with the issue because of the long-time illness of her daughter, Anna. The film, a harrowing depiction of the …

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Trial By Error: Dutch CBT Trial Targets “Dysfunctional Beliefs About Fatigue” in Long Covid Patients

By David Tuller, DrPH Since the emergence of the phenomenon now called long Covid (or Long COVID, depending on news organization), skeptics have been out in full force. Even as huge numbers of people experience a range of sequelae after a bout of Covid-19, some experts maintain that common non-specific symptoms, like cognitive impairment and …

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Trial By Error: An Exchange of Letters Concerning Professor Chalder’s Latest Disaster of a Paper

By David Tuller, DrPH Last week, Brian Hughes and I sent a letter to Occupational Medicine, which recently published yet another of Professor Trudie Chalder’s awful papers. Among other problems, Professor Chalder and her four co-authors completely misstated their own findings in the text of the paper. We called for retraction of the paper. In …

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Trial By Error: Authors Alicia Butcher Ehrhardt and Nasim Marie Jafry Discuss Their Novels

By David Tuller, DrPH It is hard enough to write when you’re feeling healthy. So I’m in awe of people who manage to write despite suffering from a debilitating chronic illness, especially one that messes around with cognitive functioning. That number includes some ME patients who have written novels. (I don’t write fiction; I have …

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Trial By Error: An Updated Letter to the NICE Chief Executive About the Unpublished ME/CFS Guideline

By David Tuller, DrPH I sent the following letter today to Professor Gillian Leng, chief executive of the National Institute for Health and Care Excellence (NICE). It was a follow-up to the letter I sent on September 1st about the agency’s decision to delay publication of it new ME/CFS guidelines. The letter has now been …

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