ME/CFS

Trial By Error: My Letter Responding to Norway Health Leader’s Efforts to Denigrate My “Activist” Work

By David Tuller, DrPH Updated on March 2, 2022: Yesterday I received a thoughtful note from Professor Miek Jong in response to my recent letter to her (see below) regarding the effort on the part of a leading Norwegian doctor to denigrate my work by describing me as an “activist.” I have sent Professor Jong …

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Trial By Error: The Lancet Publishes Whine de Coeur from Impassioned GET/CBT Defenders

By David Tuller, DrPH The Lancet has just published an anguished whine de coeur from supporters of the graded exercise therapy/cognitive behavior therapy/ [GET/CBT] approach to ME/CFS. (Or CFS/ME, as these authors insist on calling the illness in what those familiar with the debate will recognize as a childish fit of pique.) These impassioned members …

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Trial By Error: More on the Dutch CBT Long Covid Trial; Finnish Study of “Amygdala Retraining” Program

By David Tuller, DrPH Update: I have sent the following letter to the responsible person listed on the clinical trial registration for the Finnish study of “amygdala and insula retraining”: Dear Dr Lira– I am a public health researcher and journalist with the Center for Global Public Health, part of UC Berkeley’s School of Public Health. I frequently …

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Trial By Error: CBT for CFS Should Target “Problematic Worry,” Says New Study from Professor Chalder

By David Tuller, DrPH Apparently, after 30+ years of promoting cognitive behavior therapy for chronic fatigue syndrome (so-called), Professor Trudie Chalder has discovered something new: Patients worry a lot! And those with worse symptoms tend to have higher worry levels! She believes CBT for CFS can be tweaked to make a difference. She presents this …

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Trial By Error: Does “Long Covid” Need Rebranding As “Ongoing Covid-19 Recovery”?

By David Tuller, DrPH Now here’s a paper called “The Effects of Messaging on Expectations and Understanding of Long COVID: An Online Randomised Trial,” from researchers at the UK’s Health Security Agency. Two of the nine authors, including the senior author who conceived the study, are also affiliated with a National Institute for Health Research …

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